Today I got up, showered and went with my trusty caregiver to do a couple of errands. First to Verizon to find out why my phone is acting wonky. They ordered me a new phone and the USB reader I needed was 30% off. Great!
Next we went to Rite-Aid where I picked up a few odds and ends. While I was there a friend called asking if I wanted to sit in on a health insurance consult she was having and I enthusiastically went. (More about health insurance later!)
Fast forward a couple of hours and I hear the insurance agent say, “We’re losing Deb!” I had been about to drift off to sleep. I was so embarrassed. My friend explained to him how much time I spend in my pajamas and just how fatigued I get.
For me the fatigue is the most difficult thing I have to deal with. I barely got off my back-end today, yet I feel like I’m trying to walk underwater. Whole days or weeks go by like that. I have always been active-I raised four children, worked as a nurse and with a husband in the military, we moved a lot. Now I am frequently too tired to get myself out of bed.
My head understands that traumatic brain injury, fibromyalgia and chronic fatigue syndrome all cause serious fatigue. My heart, however still wants me to be up and busy all day long.