I Just Wasn’t Thinking. . .

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As I’ve shared, the last two weeks have been pretty rough for me. Last week the Chronic Fatigue(CFS) flare was subsiding, but the Fibromyalgia (Fibro) flare was still going strong.

This Fibro flare was really scaring me. It was almost as bad as when I first came down with CFS. Back then, I spent a year and a half  in bed.  Last week I could hardly get myself out of bed some days; one day I couldn’t get up until 1:30 in the afternoon. A friend patted my back and about sent me through the roof!

Wednesday I saw my doctor for a regular check-up. She was puzzled as to why I felt so bad, asking, “What caused this to happen?” I was so surprised that she didn’t know that Fibro does what it wants. Of course we can overdo it or be experiencing a lot of stress and get a flare. But, just as likely we get a flare for no fathomable reason.

Once my doctor got past the ‘what caused this’ part, she started to work on what would help me feel better. As we were talking she asked if I thought my muscle relaxant was working. I had wondered that myself as I’ve been on it for 12 years. We decided to change to a new med. Over the weekend I noticed I was having less pain and muscle spasms. I feel the new muscle relaxant is really helping.

I take a lot of meds. I’m always so careful to know what medications I take and what each of them is for. Yet, I haven’t been very good about evaluating whether or not they are each doing their jobs. At this doctor’s visit I needed an increase in one med and a complete change of another. I knew the meds weren’t working (very swollen hands and feet AND muscle spasms galore!) and yet I didn’t call and talk to my doctor. I just blamed it on the Fibromyalgia and CFS.

I made a mistake that is fairly easy to make. It’s a mistake that I think anyone with chronic illness and/or pain could make.  We need to evaluate the medications we take. We must think about whether they are working well or even working at all. Then, we need to discuss with our doctors what other medications might better control our symptoms. It’s an important aspect of self-care.

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peeringthroughthefog

Eleven years ago I was in a car accident in which I suffered a traumatic brain injury. Within three months I was also diagnosed with Fibromyalgia. Four years later I was slammed by Chronic Fatigue Syndrome. I started this blog in hopes of creating a community of people with chronic pain or disabling medical conditions. My hope is that this community will share ideas and thoughts as we explore our lives and medical conditions.

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