I’m Feeling Optimistic!

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I started going to the gym this week. Aside from it being a strange, new world to me, I did way better than I thought I could. Some exercises were so-o-o-o-o difficult! I am quite sore! But, I feel more alive than I’ve felt since the car accident in September of 2004! ( I know. I’m overdoing the exclamation points!)

Nobody’s There to Judge

While waiting to see my trainer, Luke the first time I went, all I could see were people and their water bottles in constant motion. If they weren’t running, biking or on the elliptical, they were working on a machine or moving to another machine. It all seemed so orderly and everyone seemed so adept at whatever exercise they were doing. It was only when Luke started me working on the machines that I was close enough to see the grimaces on many people’s faces and see men and women with sweat pouring off them. At that point, all my inhibitions disappeared. I realized that nobody cared about my somewhat lumpy, overweight self. They were all there to work on themselves.

I May be Slow, But I’ll Get There

Tuesday I rode the bike for one mile and I got through all of the upper body exercises Luke showed me. Friday, I rode the bike for two miles and did the upper body workout I learned on Tuesday. I then met with Luke to learn the leg, hip and tummy exercises. Those were tough, but I got through them all. Afterwards, Luke went over my workout plan with me and talked about how I needed to get my heart rate up to the appropriate level while training on the bike. I must keep my heart rate up for 30 minutes. I’ll get there.

So Sore

Luke has experience working with clients who have Fibromyalgia. He is not pushing me hard, but is teaching me to push myself. Wednesday my arms and back were really sore. I didn’t baby those muscles, just tried to use them normally. Thursday I was barely sore and realized I only was sore from my workout and not in much pain from fibro. Today I am quite sore from the lower body exercise I did yesterday. I am trying use those muscles normally (sitting down and getting up are especially difficult) and again I only have muscle soreness rather than fibro pain.

What’s my Motivation?

Luke asked me how motivated I am to getting in shape and why I am at that point now. Truthfully, I’ve been doing a great deal of reading and thinking the last two months. I’ve been able to rid myself of some old emotional baggage I’ve been carrying around. Once that was gone I was left with one emotional issue; I’ve become angry and resentful of how Fibro, CFS and the brain injury have limited my life. I hate taking all the medications I take, along with all the side effects I have to deal with. I cannot stand the food I have to eat since I was diagnosed with Gastroparesis. It’s basically the opposite of a healthy diet. So I decided to test the waters. I want to see what I can do to feel more control over my body.

This is Happening at the Right Time for Me

I kept this decision to myself; I didn’t even tell my closest friends. Seemingly out of nowhere, a friend offered me a free three month membership at her gym. Then I ran low on Lyrica and instead of three per day, I only had enough to take one a day for about five days. I did so well on the one capsule that I called my doctor who gave me permission to stay on the lower dose. I began adding more nutritious foods back into my diet and that’s going well. When I got to the gym and was weighed, I had already lost nine pounds since my doctor’s appointment three weeks before. Everything is coming together marvelously.

I’m Suffering from Complacency

I know many people wouldn’t be able to do what I’m doing now. I don’t believe that everyone with chronic illness should jump up and try to fight against their illness. That would be silly of me. What I do believe is that over the 12  years since the accident I have become complacent, feeling I had no control over what was happening to my body. Lyrica has helped tremendously with fibro and nerve pain, but the price is a 30 pound weight gain. I’ve accepted having to take meds to fight the side effects I get from other meds. I accepted the fact that if I squat down to pick something up I can’t get up and will have to crawl to a piece of furniture and drag myself back up. I want to shake off that complacency and see what I can do.

Alive and Awake

Having sore muscles has made me feel alive and awake in a way I haven’t felt for many years. Working to rid myself from emotional garbage that was decades-old freed me to take as much control as I can over my life and body. I’m stretching emotionally and physically and finding my boundaries for myself. I’m also journaling about this new adventure. It’s a great feeling!

Deb

 

 

Excuses, Excuses

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After a month of being MIA, I’m back! I’m sorry to have abandoned you all, but I have some good excuses!

First, I started to do some research on how to improve Peering Through the Fog. I was just starting to read and study this research when my cat, Gracie, became very ill.She was vomiting A LOT and I went around behind her cleaning up vomit A LOT.

I took Gracie to the vet and he thought she had kidney disease, especially since she is 15 years old. He put her on Pepcid(Yes, people Pepcid!) and did some lab work. She absolutely got better on the Pepcid and her lab-work came back really good. I have been so relieved that Gracie is well and equally relieved not to be stooped over cleaning up barf anymore!

Meanwhile all the bending and scrubbing and worrying caused both fibromyalgia and chronic fatigue to flare something fierce. I’ve had crippling pain; it even hurts to move my eyes.Sometimes I just want to sit and cry.

However, I’ve still tried to occupy my mind as that is the only way I get a little relief from the pain and fatigue. I’ve been coloring, went back to reading and studying my blog research and even took  an online class.

As you can see, I’ve also updated Peering Through the Fog with a new design that I know will allow you to move around the site and easily find what you’re looking for. I will soon be on Pinterest so will be letting you know when that is up and running.

Even in the midst of one of my worst flares, I’m so excited to be stretching my mind and starting new ventures. I wish you all a little excitement in your lives; excitement somehow keeps me in charge of my life and wins a couple of battles in the war against chronic illness and pain.

Deb

A Relaxing (kind of) Weekend

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I have a rule that I always stay in my pajamas during the weekend. My rule keeps me from leaving my apartment to do something that will increase my fatigue and staying in my pajamas keeps me in a more relaxed state of mind. Because I also have a lot of weird sensitivities from the brain injury, I often feel much better in loose fitting clothing.

So last night I got all my chores done and put on my pjs. Friday night is always the start of my weekend. Since it was after dinner I decided that I would color before bed time.

Coloring 1

This is me sitting at the table trying to color(with Niecy’s help!).

Coloring 2

Then, this is me sitting at the table 15 minutes later trying to color(with Lizzie’s help!). Anyone who has a cat knows that when they settle on your reading or coloring it’s almost impossible to remove them. I cleaned up my mess of pencils, etc. and went to lay in bed and read.

This morning I slept longer than usual and was roused by a friend who had a procedure on her back and needs daily dressing changes for the next few days. Since I was a nurse before the car accident, I was the natural choice for dressing changes. I got up and scurried around, feeding the cats, taking my morning meds, brushing my teeth and all that. Since I still had some time before my friend came over I started a project that I’ve been dying to get done.

Wall Hanging

I’ve had the rolled paper tubes attached to the backing for a couple of weeks, but finally got the flowers and birds glued on. I am so happy with the way it turned out and it looks great over my bed!

I no sooner got the wall hanging hung up when someone knocked on my door. I let my friend Riccardo in and he presented me with the nicest Easter gift.

Easter Gift

Isn’t it a fun gift?! Anyway, there was another knock on the door and it was another friend who stopped by. So the three of us chatted for a few minutes(We all live in the same apartment building) and then Riccardo left. Ann and I had a really nice visit.

Today was not a quiet, restful day, but it was such a pleasant day that I feel too happy to let the fatigue bother me. To me, sometimes the fun is worth the fatigue even though I know the fatigue could kick my butt for the next two weeks.

Anyway, that’s been my weekend so far. Who knows what tomorrow will bring. . .

A Most Satisfying “Wasted” Day

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I’m still trying to take a “time-out” from life’s whirl. Today has been the first truly successful day! No knocking, no calls and no chores were nagging at me. Oddly, it is 7 pm here and I just now realized how good it’s gone today!

Just so you know-I did feed my cats, wash my face and brush my teeth. But that’s about all. I am still in my pjs and my hair is scrappy from bedhead. What did I do all day? I played with my computer. I started out just needing to print my friend’s boarding pass for her flight to Seattle tomorrow. But first an article on CNN caught my attention. Then another and another. You know how it goes! Then I saw an ad for a hair growth shampoo and that sent me scurrying for reviews (every time chronic fatigue flares I lose a substantial amount of hair) and onto Amazon to price it and read more reviews. Then I shopped around on Amazon for a while(no buying today). I dare anyone to look at only one thing while on Amazon! In between sites I played many games of Solitaire. I didn’t get the boarding pass printed until the middle of the afternoon.

I did do some useful things-printed out an article, with illustrations, titled “The 10-minute Gentle Yoga Routine That Can Help You Lose Weight” and another called “7 Best Yoga Poses to Curb a Binge.” They both came from Prevention magazine’s website. I did pet each of my cats every time one of them became suddenly love-starved. And I did eat lunch-hot, delicious  Meals on Wheels food that my friend brought me after he got done with his meal. I usually have to walk over to the kitchen at our apartment complex to eat lunch so I didn’t count Steve’s knock as a door knock today!

My point is not to bore you with the details of my day, but rather to make a point of how a lazy, fooling-around day can sometimes be satisfying. There’s no way I could live every day like I did today, but I feel like I had a true “time-out” day. I feel gratified to have had a quiet day to myself; for once I don’t feel guilty for “wasting” my day; I feel too satisfied and relaxed for guilt to nag me.

What are my plans for the rest of the day? After dinner I’m going to do some coloring!

Deb

It Doesn’t Take much. . .

tablets-345941_1920It usually doesn’t take much to make me happy, excited even. Yesterday, I was outright thrilled by a short entry in the formulary I received from my new health insurance company.

As I was thumbing through it, looking to see if my meds were all covered, I found the heading “Fibromyalgia Agents.”There were only three medications listed: Duloxetine(Cymbalta), Lyrica and Savella, but I got so excited.

Just a few short years ago there were no meds that specifically helped Fibromyalgia; I only found out that Lyrica helped my fibromyalgia symptoms because a neurologist put me on it to help slow down my brain after I had a traumatic brain injury. I also take Cymbalta-for me it helps with depression and back pain.

I have no experience with Savella, but I know it was specifically formulated to treat fibromyalgia. As you all know there are many other meds we take to help the chronic pain and fatigue, but for now the three listed are a vast improvement.

The second reason I was so happy to see that heading is because  it means that my new insurance company counts fibromyalgia as a real illness. For too many years people with fibro have had to put up with not being taken seriously by the medical community.

We still need to help educate more health care providers and for certain there needs to be more time and dollars spent on fibromyalgia research, but there’s been some positive movement on our behalves and that makes me very happy.

Deb

Awesome Weekend

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I’ve had the best weekend! Yeah, I’m really painful and fatigued, but I didn’t let that stop me.

Friday night I got my chores done and spent the rest of the evening making myself some dinner, cleaning up after dinner and then I read until bedtime. It was so nice to have a home-cooked meal! I haven’t cooked for quite a while; I usually have a sandwich or a microwave dinner.

Saturday morning I made myself a bacon cheese omelet. Yum! I spent the rest of the day in my pajamas; I made a really pretty necklace with matching earrings; I made dinner and read quite a few pages of a murder-mystery I’m really into right now.

Sunday morning a friend dropped by and brought me still-warm-from-the-oven chocolate chip cookies. Guess what I had for breakfast?! Another friend dropped by and we talked and talked, worked in our coloring books and TRIED to figure out a way to rearrange my living room.

I didn’t accomplish much the last three days. . .I relaxed, enjoyed the company of my two best friends and ate good food. But then maybe I did accomplish a lot after all. I took care of myself without any fretting or fussing or worrying about anything at all. :~)

Deb

 

 

Pajama Day

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Today was a pajama day. I slept a little later than usual, ate when I felt hungry and piddled around with a necklace I started making last night.

Making jewelry is my passion. I make a piece of jewelry almost every day. Not only do I love working with beautiful beads, but it is also an activity that I can usually do even on my worst days.

Every day I have a headache that I liken to “being hit in the back of the head with a two by four.” The headache is in addition to the muscle pain of Fibromyalgia. I have found that if my mind is engaged, I can’t think about the constant pain at the same time. Making jewelry is a perfect activity for me. And, because I am passionate about jewelry-making I imagine the joy I feel also helps release all those feel-good endorphins we have.

There are times when I feel too fatigued and/or painful to be active; for those times I read or work on a page in one of my adult coloring books. I’m not suggesting that these ideas will work for everyone. I’m just sharing the ways in which I can hold the pain at bay while feeling like a productive adult. I feel that finding appropriate activities is an important part of dealing with chronic pain and fatigue.

Do you have any ideas you’d like to share? I would like this blog to  function as a community of sharing. Please feel free to leave comments.

Deb